Brave mum whose baby has rare disease

Some parents are able to seize on the most incredible strength, and how knows where it oshi-2comes from.

That’s how I felt about Anna Murphy and Huw Liddell who lavished love on their new baby like any other parents – but little Osian was diagnosed with a rare disease which only 400 people worldwide had.

Anna told me: “Sometimes I look at him and think ‘ you’re going to be fine’ and other times I look at him and think, ‘oh my god, how long have we got’.

Read the feature on the Mirror here.

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